Awhile ago, dear friend of mine from college asked me to share this story of a remarkable boy that she knows. His name is Noah and when he was nine years old doctors discovered that he suffered from Restrictive Cardiomyopathy (RCM). What's even more devastating is that a pacemaker or defibrillator would not be enough but Noah will need a heart transplant. He's been on the list now for 397, days 22, hours, 45 minutes and still counting. They don't know where he is on the list or when he could get one. You can read more about his story HERE.
There is nothing that breaks my heart more than an innocent kid who has to suffer with a condition such as this. I can't even imagine what his parents went through when they found out the news and how they are able to stay strong through this difficult time in their lives. I read stories like this and can't help but feel so helpless. What can one person really do?
Well, Noah's mom put together a great website to raise support for her son and others with practical ways you and I can both help. The biggest way to help is to show your love through prayer and encouragement. Add Noah to your prayer list. They have a list of prayer requests on the site. On November 12th he has an appointment with the transplant team so mark that on your calendar and say a prayer for them. If God has financially blessed your family consider donating to help Noah and his. You can read the cost break down of and how you can help them financially. And of course you can consider being an organ donor. I never really thought of this until learning about Noah, but this is something I will be considering.
I'm going to be praying and following the Lietzau family through their journey. If you want to also sign up for their monthly email HERE. If you have a facebook, twitter, blog, be sure to share Noah's story as well.